Colin Farrell: James is 'exactly the way he should be'

Since going public with son James‘ Angelman syndrome diagnosis, actor Colin Farrell, 31, has been willing to discuss it and how it affects his family, telling Irish talk show host Ryan Turbridy that it’s ‘never an imposition‘ to ask him to speak on the topic.

Angelman’sis a neuro-genetic disorder. The 15th chromosome isarrested, it’s dormant … not fired up. It affects their fine motor skills, picking things up — there’s a shakiness. Its led Angelman’s to be misdiagnosed as cerebral palsy at times. They say that one in30,000 children is affected by it.

It’s just different. It’s not different tome. He has his own path. It was caught pretty early because he started having seizures at about eight or nine months … horrible. It got diagnosed. For awhile they said he had cerebral palsy. Then we got early intervention. Early intervention is so important — the quicker something is diagnosed then the quicker you can counteract its negative effects. So he’s great. He’s four years old now. He’s just brilliant.

The reason I [revealed that James had Angelman’s] was just because I was working with the Special Olympics and they were asking me questions, and I didn’t talk about my son [but] I felt like I was betrayinghim, like it could be misconstrued as shame, which would be terrible,because he’s such a celebration, the little fella.

So I called Jimmy’s mother Kim [Bordenave] and I cleared it with her, then I did the story. It was very fortuitous that I ended up working with the Special Olympics before Jimmy was born, since he did end up having special needs.

He’s nothing but a gift. He’s, as far as I’m concerned, exactly the way he should be. I look around and I seepeople who move perfectly, who walk with grace, who speak with greatdiction and clarity and a great use of the English language and we’reall miserable f–kers — including me, at times!

You know, we want to be this or we want to be that, or compete with the man next to us … and then I see this fella who doesn’t move the way what’s perceived to be ‘normal’ is, and he’s as happy as can be. He’s just brilliant. It kind of blurs the line between what’s a hindrance [and what’s not].

Angelman syndromeis a neuro-genetic disorder characterized by developmental delay, speechimpediment, seizures, hand flapping movements, frequentlaughter/smiling and a happy demeanor. To learn more, please click here.

Source: Tubridy Tonight

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