Two little girls with the same extremely rare medical condition met for the first time this week.
Three-year-old Audrey and 6-year-old Virsaviya Borun, both live with Pentalogy of Cantrell, an extremely rare congenital condition that arises in fewer than one in a million births. For the girls, it means their hearts are actually located outside of their chests, their intestines protrude from their stomachs and they lack a diaphragm and abdominal muscles.
Audrey’s mom, Ashley, heard of Virsaviya and thought it would be a nice experience for the girls to meet someone else dealing with the same condition. Both are defying the odds: They gave me no hope that Audrey would live two days, Ashley told Inside Edition.
On their playdate, the pair took turns listening to each other’s heart with a stethoscope: [Audrey] knows what she’s going through, to see another child with same condition, is amazing, Ashley said.
They wrapped up their visit by heading to a Build-A-Bear workshop. The last stage of the doll’s construction, where the girls got to place a heart inside their newly-built friend, must have been an emotional moment, but if it was, you wouldn’t know it to look at them.