A Rare Genetic Disease Should Have Killed Her by Age 10 — How a Medical Breakthrough Saved Her Instead
Expected to die young, Isabel Bueso is into her third decade — and counting
She Beat the Odds Against a Rare Genetic Disease — Now She Could Die If Forced Out of the U.S.
"Isabel was expected to live no more than 7, maybe 10 years old. And now ... she still has a lot of dreams for herself," her mom says